NOTHING FOR ME WITHOUT ME: CAREGIVER TRAINING NEEDS

“Nothing About Me Without Me”: New Perspectives on Case Reports

Case report This issue of Global Advances in Health and Medicine offers three perspectives on the treatment of a patient diagnosed with breast cancer, including the patient’s perspective. Hopefully, this will become more common. These perspectives offer a snapshot summary of 5 years of treatments and follow-up visits and provide insight into the choices that shaped the outcomes for this patient...

Healthcare in a land called PeoplePower: nothing about me without me.

In a 5-day retreat at a Salzburg Seminar attended by 64 individuals from 29 countries, teams of health professionals, patient advocates, artists, reporters and social scientists adopted the guiding principle of 'nothing about me without me' and created the country of PeoplePower. Designed to shift health care from 'biomedicine' to 'infomedicine', patients and health workers throughout PeoplePow...

“Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records

BACKGROUND Patient accessible electronic health records (PAEHRs) enable patients to access and manage personal clinical information that is made available to them by their health care providers (HCPs). It is thought that the shared management nature of medical record access improves patient outcomes and improves patient satisfaction. However, recent reviews have found that this is not the case....

No decisions about me without me!

"Nothing about me, without me": participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors.

Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors is reviewed. We begin by tracing the origins of and defining both participatory action research and self-help/mutual aid. In so doing, the degree of correspondence between the assumptions/values of participatory action research and those of self-help/mutual aid for psychiatric consumer/survi...